Tag Archives: breast cancer

Selina Siak Chin Yoke On Becoming a Writer

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I began writing out of desperation and a cherished dream. While recovering from breast cancer, I went into a chemo-induced depression without realising it. I had no idea what was wrong, only that the ground beneath me seemed to have collapsed. Months passed. When I still found no equilibrium, I went to see a counsellor at the cancer charity, MacMillan, who suggested a bout of creative writing.

Not long afterward, I recalled a dream I’d once had – of writing a novel loosely inspired by my great-grandmother who I had never met. Stories were re-hashed endlessly in my family about this formidable woman who, despite being uneducated, started a business at a time when few women in Malaya did so. She always seemed larger than life – a true role model in a profoundly patriarchal culture.

I began my writing project by doing research. I knew that what I wanted to write was a novel based on real historical events, possibly even on events which my own family had experienced.

Armed with the detailed outline of a story, I planned a trip to Malaysia. I pored through newspapers in the National Archives and interviewed anyone who would talk to me about the old days. Some who gave their time were family members: aunts, uncles and cousins, but a few were people I barely knew. Amazingly, I came across people who had actually met my great-grandmother. Their anecdotes provided a wonderful tapestry which fuelled my imagination further.

Spurred on by Malaysia’s heat and its panoply of aromas, sounds and colour, I began writing the first draft of The Woman Who Breathed Two Worlds, my first novel. The story follows the life of a mixed-race woman during a time of rapid change in Malaya. It is a complex and rich story about cultural identity, set in my hometown, Ipoh. As I described the modernisation of the town and how the protagonist tries to retain her cultural traditions in her rapidly Westernising world, I realised I was telling not only her story but the story of her country, Malaya.

In this way, the Malayan Series was born. My new novel, When the Future Comes Too Soon, follows on from the first book, but the two can be read independently and are very different. In this second novel Malaya is at war. There is a new protagonist, Mei Foong (the daughter-in-law of the heroine in the first book), who is thrown into a world gone mad. Somehow, she must find ways to keep her family alive. How she goes about this and what happens to her and her family lie at the emotional heart of the novel.

Their story is as much about betrayal, in its many forms, as it is about survival and love and what courage means. Sometimes, it takes extreme circumstances for people to discover what they’re made of. This is the case for Mei Foong, who finds her inner steel through war and suffering.

Selina Siak Chin Yoke’s When the Future Comes Too Soon is published byhen the Future Comes Too Soon and out now

 

 

Do You Have to Lose Your Hair During Breast Cancer Treatment?

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breast cancer, hair loss,

Breast cancer, by its very nature, can challenge a woman’s perception of her femininity. Who wants people to think they have abnormal breasts? I didn’t. Breast surgery can also be psychologically traumatic, and radiotherapy can affect the appearance of the breast too.

Sometimes, as part of cancer treatment, chemotherapy drugs are used, and some of these cause hair-loss – another devastating blow to confidence and self-esteem. Even when hair regrows, it may be damaged, becoming delicate and curly (so-called chemo curl) for a long time afterwards.

So does your hair have to fall out or weaken? Well, chemotherapy tends to damage fast-growing cells, which is why it works against cancer. However, for the same reason, hair follicle cells are also sometimes affected.

Wearing ‘cold-caps’ during treatment can help by lowering scalp temperature. This reduces blood supply to hair-roots and thus local exposure to the chemo-drug. This can limit hair damage/loss in many people, but not all.

Recently, hairdresser and biochemist, Daniel Field, has developed products to protect hair during and after chemotherapy.

Daniel has a fascinating story. Whilst young, he hated the smell of his mother’s perming lotion, and decided to invent non-smelly products. They were so successful that he became a very young millionaire. He then opened several hairdressing salons and trained as a hairdresser himself.

Sadly he later had the heart-breaking experience of shaving his own mother’s hair when she started to lose it during treatment for ovarian cancer. He told me of the frustration he felt, as he tried his best to cut a nice style into a less than perfect wig for her.

This inspired him to use his biochemical expertise to develop natural products to protect hair during chemotherapy. They restore the alignment of hair amino acids, thus reversing damage and chemo-curl, improving texture and strengthening delicate hair. He also has hair-colour products which are so gentle that they can be used whilst having chemotherapy. His Hair Growth Active spray keeps hair in the growing phase, thus encouraging regrowth after hair-loss.

But breast cancer treatment affects hair in other ways too. Many women require anti-oestrogen treatment for years after diagnosis, such as tamoxifen or aromatase-inhibitors. These reduce natural oestrogens and thus can cause scalp irritation or dryness and dry/frizzy hair. The hair can thin, sometimes leading to male-pattern baldness. Daniel tells me that his products are able to help these problems too.

Daniel has recently opened a suite in central London where he provides hair-care services and advice. A wig service is also provided by Jane Whitfield, and Fiona Murphy, who has her own interesting story, provides beautician services specially for people going through cancer. Daniel’s hair products can also be ordered from his website and he offers fifteen minute free consultations.

So yes, some people will suffer hair loss or damage during their breast cancer treatment but it isn’t inevitable, and there are steps you can take which may help. Take care of yourself during this difficult time.

By Dr K Thompson, author of From Both Ends of the Stethoscope: Getting through breast cancer – by a doctor who knows

http://www.amazon.co.uk/dp/B01A7DM42Q http://www.amazon.com/dp/B01A7DM42Q

http://faitobooks.co,uk

Note: This article expresses personal views. No warranty is made as to the accuracy or completeness of information given and you should always consult a doctor if you need medical advice.

Further Information:

http://www.breastcancer.org/tips/hair_skin_nails/cold-caps

http://danielfieldsuite.co.uk

http://www.sparklethroughchemo.co.uk

http://bit.ly/2d7Vn2l

 

 

Mustard Gas – a life saver? By Margaret Graham

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Out of darkness came hope, or so explained Justin Stebbing, Professor of Oncology, Imperial college, London at the Pink Ribbon conference on 17th September. 

 

Gerard Dugdill organized the Pink Ribbon’s 3rd breast cancer forum, in association with the Royal Society of Medicine, 1 Wimpole Street, London W1G and Frost Magazine was lucky enough to be there on the morning of the Patients’ Day.

 

A series of speakers spoke to an audience of patients and their relatives about many things, not quite sea and ships and sailing wax, cabbages and kings, but surgery,  and nursing support. Frost’s own Dr Kathleen Thompson talked about the things she had learned during her journey through cancer, and had excellent ideas for navigating the system.  It is a journey so amusingly but poignantly described in her award winning book From Both Ends of the Stethoscope. A book which is selling strongly internationally.

 

Then it was the turn of a plastic surgeon, and finally Justin Stebbing who kicked off his talk about what were the beginnings of cancer treatment, and where it appeared to be going now, as research speeds at a gallop into the future. He explained that immunotherapy which is being developed looks as though it could be the way to tackle cancer in the future. As he said, this is a mile ahead, but research is already a few yards into the journey.

 

But back to mustard gas. Justin told us how Dr Stewart Francis Alexander made the link from mustard gas to cancer treatment. He  noticed that many of those caught in a mustard gas attack had, after several days, a surprisingly low number of immune cells in their blood – cells that, if mutated, can go on to develop into leukaemia and lymphoma.

 

Alexander hypothesised that if mustard gas could destroy normal white blood cells, it seemed likely that it could also destroy cancerous ones – thence the start of chemotherapy.

 

This was a hugely valuable day, one ultimately which gave hope that we are on the way in some years hence to non invasive treatment, and perhaps protection.

 

 

From Both Ends of the Stethoscope: https://www.amazon.co.uk/Both-Ends-Stethoscope-Getting-cancer-ebook/dp/B01A7DM42Q

 

 

Pink Ribbon’s 3rd breast cancer forum

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Pink Ribbon’s 3rd breast cancer forum will be held on:    
16-17 September 2016; in association with the Royal Society of Medicine. Venue: 1 Wimpole Street, London W1G 0AE.

Pink Ribbon’s 3rd breast cancer forum

Friday 16th   September 9 – 5, with time for networking afterwards. The speakers will concentrate on cancer in the young, the pregnant and with family history. These sessions are primarily for GPs, breast specialists in oncology, pharmacology, surgery, plastic surgery, brow bone,  radiology, screening, nursing and general health planning

 

Saturday 17th September 10 – 4 is designed for patient and patient support groups. Frost’s medical correspondent, doctor and patient, Kathleen Thompson is amongst the speakers and  will be talking at 11.15 on Reactions to diagnosis: getting the treatment you want. Kathleen’s award winning and hugely successful book From Both Ends of the Stethoscope, charts not just her own, often hilarious, journey through diagnosis to treatment, but also how to get the right treatment.

 

The force of nature behind Pink Ribbon is Gerard Dugdill who read medicine initially and then philosophy at Cambridge. He moved on to study journalism at Cardiff and worked as a journalist and publisher for a number of years. He owns two magazines, Credit Today and Pink Ribbon, and is one of those people who rolls up his sleeves and sets off in pursuit of his dream: in this case, to help eliminate breast cancer.

 

 

A very few tickets are still available – from:  gd@pinkribbon.co.uk

 

www.pinkribbon.co.uk

 

 

 

Breast Cancer: in the young, the pregnant and with family history

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Pink Ribbon logoOn 17th September, the UK’s leading annual event for anyone affected by breast cancer will take place. There will be information from a range of experts, including Frost Magazine’s medical consultant Dr Kathleen Thompson. 

Registration: 10.00 am – coffee.

Morning session:  diagnosis, management and treatment for young women 

DIAGNOSIS : 10.30 Chairs introduction. Chairs: Mark Ho-Asjoe (St Thomas), Laura Johnson (Royal Marsden) 

 10.35 Breast cancer: the extent of the problem for young women: Bernard Rachet, reader in cancer epidemiology, London school of hygiene and tropical medicine 

10.55 From diagnosis onwards: navigating the breast cancer system: Denise Flett, young women’s breast cancer clinical nurse specialist (CNS), Royal Marsden hospital 

11.15 Reactions to diagnosis: getting the treatment you want: Kathleen Thompson, doctor, patient and author of From Both Ends of the Stethoscope 11.35 Panel 11.45   Short break + pastry 

TREATMENT: 12.00 Surgical options for hereditary and non-hereditary breast cancer. Breast conservation in young women Hisham Hamed, consultant oncoplastic breast surgeon, honorary senior lecturer, Guys and St Thomas Trust 

12.35 New options for the management of different breast cancer subtypes: Justin Stebbing, professor of oncology, Imperial college, London  

Following lunch: pregnancy, trials and survivorship 

2.15 Reserved (charity and sponsor, Philips)
2.35 Pregnancy and breast cancer: Alison Jones, breast cancer consultant, including for pregnancy and clinical trials, Leaders in Oncology Care 

3.10 Living with and beyond breast cancer: Susannah Stanway, consultant, medical oncology, breast unit, Royal Marsden hospital; also acute oncology unit, Croydon university hospital 

Venue: Royal Society of Medicine,1 Wimpole Street, London W1G 0AE 

BOOK (Event Brite): http://tinyurl.com/h45xfbf

* 16th September. Separate CPD day for clinicians: rsm.ac.uk/breastcancerforum

 

Is This the Best Treatment for me Doctor? Statistics on a Postage Stamp by Dr Kathleen Thompson

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When we read about impressive new drugs, do we really understand what the percentages quoted mean?

You may need to make medicines-related choices—particularly for cancer, but other illnesses too. To make rational decisions you MUST understand the numbers your doctor quotes. He won’t deliberately mislead, but it is easy to misunderstand  statistical data.

So let me give you an inkling—not a maths lesson, just a few tips to help you ask the right questions.

Last week the BBC headlined: ‘Breast cancer: Taking hormone drugs for up to 15 years can reduce risk … cancer recurrence was cut by 34%’

Wow. Impressive. But let’s look closer: In that particular study, 95% of those who took the treatment for 15 years were cancer-free, compared to 91% who stopped at 10 years.

Hang on – 95% isn’t that different from 91%. How is that cutting risk by 34%?

Well (and this is important) improvement percentages quoted in newspapers, and by doctors and scientists, are often described in relation to the original risk.

In these patients, the original risk of cancer recurring was only 9%, so any improvement would appear large relative to 9%. If the original risk had been higher, the same benefit would have appeared less.

OK that’s the bottom line. But for the curious, another example:

Relative Risk Reduction (RRR) is a statistic often used to describe drug benefit. It is what it says—the reduction in risk (eg risk of death, or disease recurrence) relative to the original risk, ie the actual risk improvement divided by the original risk.

cancerriskreduction2

The Table shows an example. Patient A has a low risk of cancer returning (9%); Patient B’s cancer is more likely to recur (50%).

You can see from the Table that Patient A’s risk will only decrease by 4% with Treatment X, whereas Patient B’s will decrease by 15%.

Knowing this, Patient B should be more inclined to take treatment X than Patient A.

However, if Patient A’s doctor describes the benefit as RRR (see Table), then Patient A’s risk appears to decrease by a massive 44%. Consequently Patient A may have wildly inaccurate expectations for the treatment. The doctor isn’t tricking him, RRR is scientifically valid, but you need to know what it means.

This example highlights another point. Sometimes we only know that a treatment works in most people. However sometimes there is more information about how much it works in different patients eg Patient B would respond to Treatment X more than Patient A.

If available, you need specific information on the benefit for YOU. This could influence your decision, particularly for a treatment which has significant side-effects.

So, in summary: 

If your doctor uses percentages to explain a treatment benefit, ask:

1. Exactly what do the numbers mean?

2. By how many percentage points should you improve on treatment?

3. Is there more specific information for your particular situation? 

Don’t be frightened to ask your doctor for more information—he wants you to understand and may not realise when you don’t.

By Dr K Thompson, author of From Both Ends of the Stethoscope: Getting through breast cancer – by a doctor who knows

http://www.amazon.co.uk/dp/B01A7DM42Q http://www.amazon.com/dp/B01A7DM42Q

http://faitobooks.co,uk

Note: These articles express personal views. No warranty is made as to the accuracy or completeness of information given and you should always consult a doctor if you need medical advice

Further information:

http://www.bbc.co.uk/news/uk-36455719

http://www.nejm.org/doi/pdf/10.1056/NEJMoa1604700

http://scienceblog.cancerresearchuk.org/2013/03/15/absolute-versus-relative-risk-making-sense-of-media-stories/

http://www.breastcancer.org/risk/understand/abs_v_rel

http://www.nps.org.au/glossary/absolute-risk-reduction-arr

 

 

 

From Both Ends of the Stethoscope By Dr Kathleen Thompson Book Review

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From Both Ends Of The Stethoscope by Dr. Kathleen Thompson book review, health, breast cancer,I have to admit that I thought From Both Ends of the Stethoscope would be good. I also knew that it would educate me, but what I didn’t realise was that Dr Kathleen Thompson would make her book so entertaining and readable. The book is outstanding, an essential for anyone with breast cancer and their family. Dr Kathleen Thompson writes about her own experience in a graceful and poignant way while also giving you the inside track. You would only get this type of information from an insider and Dr Kathleen Thompson is an insider twice over; as a doctor and cancer survivor. I was incredibly impressed by her book. Her writing is so good she could write a novel.

Far from a fuddy medical book this guide takes you by the hand and tells you everything you need to know. It takes the process step-by-step, giving invaluable information at every point, all intertwined with Dr Kathleen Thompson’s fine prose on her own experience. I loved this book. Well done Dr Kathleen Thompson. Well done indeed.

Dr Kathleen Thompson is Frost’s medical expert but I promise you this has caused no bias for this review. This book is stunning and I am proud to have Dr Kathleen as one of our writers. The woman is an inspiration. You can send us any questions for her about any medical problem to frostmagazine@gmail.com or tweet us @Frostmag

Whilst dealing with her own breast cancer, Dr Kathleen Thompson recognised the desperate need for a ‘going through breast cancer’ guide. Her experiences make a fascinating story in themselves, and Kathleen uses them to guide the reader through diagnostic tests and treatment options, what to do when things go wrong, and when mistakes are made. All the while she explains what is happening and why. 
Recognising that anyone encountering cancer is in a state of shock, she delivers factual information intermingled with her own story, in an easily-digestible, and often amusing format. Each chapter ends with further information sources and a summary. 
Kathleen looks back on her cancer journey with honesty, humour and compassion, and with the benefit of her medical understanding and knowledge of the system.  
Later in the book she also explains medical research and how to assess the credibility of the numerous cancer treatment claims, and what we can all do to protect ourselves from cancer.

 

Read an excerpt from From Both Ends of the Stethoscope here.

Both Ends of the Stethoscope by Dr Kathleen Thompson

Paperback ISBN: 978-0-9935083-0-1

E book ISBN: 978-0-9935083-1-8

http://www.amazon.co.uk/dp/B01A7DM42Q

 

 

Dr Kathleen Thompson shares some excerpts from her enormously helpful book, From Both Ends of the Stethoscope

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Frost asked Dr Kathleen Thompson if she felt like sharing some excerpts from her enormously helpful book, From Both Ends of the Stethoscope.

Here is the first in a series of excerpts, and an invaluable read for everyone. Who knows, after all, when we will need to support someone with cancer, or even face a diagnosis ourselves. I can remember standing outside Ascot races one day last year with Kathleen, rattling collecting tins for three cancer charities. Many people stopped, and gave, because they had relatives with the disease or indeed, were, or had been sufferers themselves.

Since her brush with the disease Kathleen has lived life to the full, and perhaps with even greater gusto before. She has climbed Kilimanjaro, cycled for charity in southern India, and taken up ballroom dancing with a vengeance, (she has recently qualified for Blackpool – be still my beating heart. I intend to try and go to cheer her on). All this as well as continuing in her profession in medical research, writing a regular medical column for Frost, and best of all, writing about her own journey with cancer – From Both Ends of the Stethoscope which is full of sensible advice. The woman is a powerhouse, an inspiration, and the most amazing fun.

However did this happen to me?   by Dr Kathleen Thompson

From Both Ends Of The Stethoscope by Dr. Kathleen Thompson book review, health, breast cancer,

The nurse asked me to lie on the couch by the ultrasound machine.

‘The doctor will be here soon.’

A tall man with white hair walked through the door and smiled. He sat down next to the machine.

Looking straight into my eyes, he spoke. ‘The problem is, we’ve seen a lump on your mammogram. So I need to look at it with this ultrasound.’

Very gently, he pulled down my blue gown and exposed my breasts. I flinched as he squirted a blob of cold gel onto my skin. He pressed the ultrasound probe onto the blob, and moved it slowly over my right breast for a few minutes. He pointed to the fuzzy image on the small screen.

‘This is the lump — it’s about 2cm wide.’ His voice was quiet but firm. ‘Do you see the irregular shape, and these little bright flecks? These are worrying.’

He looked at me as he said this. His blue eyes offered sympathy and strength.

The screen looked like an ancient TV with a lousy reception. I couldn’t make out any lump—but I understood ‘irregular shape’ and ‘worrying’ well enough.

‘I see you’re a doctor. Where do you practice?’ he continued.

‘I was a paediatrician, but now I work in drug research.’

‘Oh? Interesting.’ His smile morphed into a serious expression, ‘I need to take a biopsy of this lump. We have these neat little things now.’ He held a small black box between his finger and thumb.

‘I’m going to press this box over the lump, then push this button, and a needle will shoot out and take the sample. It’ll make a loud click, but it won’t hurt, because I’m going to numb you first.’

I lay on the couch in the semi-darkness, watching him fill a small syringe with local anaesthetic. The cold wall, pressing against my left arm, forced me to concentrate. Everything was unreal — surreal. What was I doing here? I’d only come in for a check. My left hand gripped the coarse material of the hospital gown as if it was a survival rope. My right hand was visible to him and the nurse, so I forced it to relax.

Lifting the small syringe towards me, he injected the anaesthetic into my breast. It stung, but I hid the pain with a smile. ‘No, it doesn’t hurt. It’s fine. It’s a lovely day outside. I don’t expect you’ll have much chance to enjoy it, stuck in here.’

Somehow I controlled my voice — but tears were streaming down my face. I hoped the darkened room would hide them.

Then, a loud click shattered the quiet. He’d taken the biopsy, and he was right, it hadn’t hurt.

‘Well done. All finished. Nurse will pop a dressing on for you. Then she’ll take you to see the breast surgeon. Good luck with your research work.’ And he was gone.

On an otherwise unremarkable spring day, my life had just changed forever.

 

Excerpt from:

From Both Ends of the Stethoscope by Dr Kathleen Thompson

Paperback ISBN: 978-0-9935083-0-1

E book ISBN: 978-0-9935083-1-8

http://www.amazon.co.uk/dp/B01A7DM42Q